Wow it's hard to believe that summer is coming to a close, and that a year has passed since I first noticed a change in my body. I still don't know for sure if I have ALS, (Neuro says i do)I do know i have scleroderma and sjogrens. I only saw one person on the Internet that had both ALS and one of the other two. Either the Neuro is wrong or I am very unique. Time will tell. But God has a reason for me being here and that's good enough for me. Have a blessed week, I just want to add that I get my positive attitude from Greg and the many people I follow online.
Cathy
Sunday, August 29, 2010
Looking back
Posted by Cathy Curths at 6:28 PM
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12 comments:
Cathy, your attitude is fantastic . Keep it up, Love Dad and Alice
Cathy, stay positive and keep in control. You are inspirational to a lot of people. See you soon!
Love, Greg
Thanks!I get the positive attitude from watching Greg and other people who are dealing with similar circumstances. I've had no spasms or twitching which is so common with als, I find that very odd.
Love, Cathy
Another odd thing is the pain issue. My doc said it's a painless disease. Yet I've read so many blogs that said that's a load of crap, these people are in tremendous physical pain. I have never felt any physical pain.
I love my iPad! It's so much faster than the pc, and easier to use
Dad, did I tell you that Sjogrens and Scleroderma were the things Les found on the computer when he was doing all that research?And it turned out I have them! He should have been a Doctor! Our Tomatoes are late this year, how about yours?
Cathy,are your systems about the same, or have they changed ? Any change in your walking habits ? Give us an update. Love you and Dr. les Dad and Alice
I'm still walking and arms legs hands still working. I take 8 methotrexate a week and will stay on that, tho she siad she could bump me up to ten. The thing I notice the most is a lot of excess mucus it makes it harder to talk and eat. I take an allergy pill for that. But my weight is holding steady, I eat often in small portions.. Still taking the Rilutek, too. How are you and Alice feeling?
Cathy,
Glad to hear you are holding steady. Hope that continues. I am glad you are not having pain. I just wish they could tell you what it is and how to cure it.
Both you and Greg are incredibly inspiring. It helps me to realize all we have to be thankful for.
Glad you like the iPad--welcome to the wonderful world of Mac. I've been on Macs since day one so I have no clue about pc's.
Looking forward to seeing you.
love and prayers,
Mary D.
Yes I don't have any real pain, just aches and pains if I over due. Then I get a lecture from Les. Well they know i have two auto immune disorders, there is no cure but medication to keep it under control. Yes I like the iPad, it has a good text to speech app. See you soon,
Love, Cathy
Hello Cathy and Les. I'm checking in. Thanks for your continued postings. I look forward to seeing you in a few weeks. Sunday is the Dakota 5-0 Mtn. bike race which i will ride in Spearfish SD. I hope to get faster than last year. It is in pretty mountains which helps make it fun. The kegs of beer at the end help too. Love Alan D
Keep on riding! And the beer at the end sounds good. I can only have a glass every now and then, to many meds that are hard on my liver. But every once in a while I have a glass, and it tastes so good! We look forward to seeing you, too. And how fun to see all your H.S. classmates, I bet they all look different now. Fun to look back on highschool days.
Love, Cathy
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